The Precision Medicine Initiative (PMI) Working Group of the Advisory Committee to the NIH Director (ACD) is hosted a public workshop on digital health data and research cohort design as they relate to the proposed PMI national research cohort. The workshop focused on solutions to challenges in the design, composition, and organizational characteristics of a national research cohort of one million or more volunteers. For more information, visit http://www.nih.gov/precisionmedicine
Agenda and Time Codes:
Welcome and Meeting Overview – Dr. Jeff Balser – 00:01
Special Session with Senator Lamar Alexander – Dr. Francis Collins – 08:42
Overview of Public Input from NIH RFI – Dr. Gina Wei – 44:35
Health Care Delivery Network Cohorts – Dr. Rory Collins – 59:47
Research Cohorts – Dr. Sekar Kathiresan – 2:23:38
Ensuring Inclusion – Dr. Esteban Burchard – 3:23:52
Cross-Institutional Digital Health Data Sharing for Research – Dr. Josh Denny – 4:22:20
White House and ONC Vision for Future U.S. Health Data Infrastructure – Dr. Pearl O’Rourke – 5:20:28
HIT Developer Solutions for Data Sharing Across Institutions – Mr. Eric Dishman – 6:06:20
Day 1 Summary – Dr. Kathy Hudson – 7:09:38
source